Burden of care for families and carers / staff

Supporting complex information in written form and conveying those lengthy details to others for funding can be challenging. Use of the following tools has been helpful in demonstrating the level of high support needed:

International Classification of Functioning, Disability and Health (Child and Youth Version) – World Health Organisation.

RAND Health Survey (1.0) – look at usage for other purposes worldwide and within government own research. Topics: Energy conservation, management of workload etc

Non Communicating Children’s Pain Checklist

Caregiver Strain Questionnaire

Children’s Scale of Hostility and Aggression: Reactive / Proactive (C-Sharp)

Assessment of Communication and Interaction Skills (ACIS)

Repetitive Behavior Scale for Early Childhood, Repetitive Behavior Scale

Yale Global Tic Severity Scale